In 2009 at the age of 4, our daughter Olivia was diagnosed with a rare
degenerative retinal disease called Lebers Congenital Amaurosis (LCA)
due to the CRB1 gene mutation. This disease causes progressive vision
loss and there currently is no cure.
Together with other families of children diagnosed with similar diseases
specific to the CRB1 gene mutation, we are raising money to fund research
towards a cure. Without a cure, Olivia will continue to lose her vision until it
is gone. Most likely by the time she reaches early adulthood. Many children
in our group have already lost a significant amount of their vision already.
Together our families have formed the Curing Retinal Blindness
Foundation. By the end of 2013 our families had raised enough money to
begin financing five separate research projects. You can see more details
of these projects as well as other information on our foundation on our
We will not stop until a cure and treatment is found for our children to not
only put a stop to this progressive disease but to also restore lost vision.
Thank you for visiting our site, please visit our other pages and check out
our fundraising events. You can also see more information about Olivia on
our facebook page Eyes for Olivia.
Mike and Kim, Sarah, Olivia and Sean