Eyes for Olivia was created to help with our local fundraising efforts for the Curing Retinal Blindness Foundation.

At the age of four, our daughter Olivia was diagnosed with a rare retinal disease called Lebers Congenital Amaurosis due to a mutation in the CRB1 gene. This disease causes progressive vision loss and there currently is no cure. Although we are very grateful that Olivia still has a significant amount of her vision, due to the progressive nature of the disease she will continue to slowly lose the vision that she has. We have no way of knowing how quickly the progression of vision loss will occur or how long before Olivia will lose her vision completely.

The Curing Retinal Blindness Foundation is made up of other families like ours raising money to fund research towards a cure for CRB1 related retinal disease. As of the end of 2014, our family alone has raised approximately $34,000 for research.

You can see more information on the efforts of our families and the research that we are now funding at our website, www.crb1.org. We invite you to visit the site, meet our other families and see the progress that is being made. I am confident that with the continued efforts of our families and the amazing work of the research scientists a treatment and cure will be found to not only stop the progression of lost vision but bring back the vision already lost.

Thank you for visiting our site. Please visit our other pages and plan to attend one of our fundraisers. Or, visit the donate page and make an online donation direct to Curing Retinal Blindness Foundation on behalf of Olivia and the Hoffman family.

To see more information check out our facebook page Eyes for Olivia.

Thank you,
The Hoffmans