Eyes for Olivia was created to help with our local fundraising efforts for the
Curing Retinal Blindness Foundation.
At the age of four, our daughter Olivia was diagnosed with a rare retinal disease
called Lebers Congenital Amaurosis due to a mutation in the CRB1 gene. This
disease causes progressive vision loss and there currently is no cure. Although
we are very grateful that Olivia still has a significant amount of her vision, due
to the progressive nature of the disease she will continue to slowly lose the
vision that she has. We have no way of knowing how quickly the progression of
vision loss will occur or how long before Olivia will lose her vision completely.
The Curing Retinal Blindness Foundation is made up of other families like ours
raising money to fund research towards a cure for CRB1 related retinal disease.
As of the end of 2014, our family alone has raised approximately $34,000 for
You can see more information on the efforts of our families and the research
that we are now funding at our website, www.crb1.org. We invite you to visit the
site, meet our other families and see the progress that is being made. I am
confident that with the continued efforts of our families and the amazing work
of the research scientists a treatment and cure will be found to not only stop
the progression of lost vision but bring back the vision already lost.
Thank you for visiting our site. Please visit our other pages and plan to attend
one of our fundraisers. Or, visit the donate page and make an online donation
direct to Curing Retinal Blindness Foundation on behalf of Olivia and the
To see more information check out our facebook page Eyes for Olivia.